Good morning friends!

Please keep cool today.  I wanted to share some information from my last doctors visit, 2 weeks ago.  The biggest problem that I'm experiencing its the reynaud phenomenon in my fingers.  The doctor perscribed a low dosage of blood pressure medicine which is suppose to prevent the blood vessels in the fingers from dilating.  I haven't started the medicine as of yet but for anyone who has experienced this symptom,one of many, know that its very uncomfortable, painful and for some very dangerous.  We also spoke about esophagus issues including acid reflux and difficulty digesting food.  If this symptom isn't to bad and you have low to moderate difficulties you can take over the counter medicine for this issue but if anything changes for the worst contact your doctor. The scleroderma affects your esophagus in way that it slows down the digesting process of your food so chew slowly and drink plenty of water, I know we like the juice and soda, myself included :*) but the water is whats best during meal time. So I just wanted to share this with you, please feel free to comment and share information.  Thanks!

Hope, Faith and Support

Good morning, I hope that everyone enjoyed their fourth of July.  I would like to say thank you to those that have responded to my blog, I was a bit discouraged in the beginning because I didnt receive any feedback but because of you reaching out to me, I will continue to share my experience, thoughts and support for of my scleroderma sweeties.  My prayers are sent out to those that have experienced this disease called scleroderma personally or through a loved one and I look forward to meeting new friends along the way.

Introduction

Hello, my name is Kira and I was diagnosed with scleroderma four years ago.  I would like to spread the word about this disease.  I have the CREST syndrome of scleroderma.  I have come to grips that I have this connective tissue disease but through my research I've found out that a lot of people really don't know about scleroderma.  There are a numerous amount of people who have this disease but it does not define you and although you have your good and bad days overall the more you know the better off you are.  I would like any feedback, information, opinions or comments.  Not everyone can relate to the issues surrounding this situation so even if you need positive feedback or just someone to chat with that know what your going through please feel free to chime in, calling all my scleroderma sweeties.