Introduction

Hello, my name is Kira and I was diagnosed with scleroderma four years ago.  I would like to spread the word about this disease.  I have the CREST syndrome of scleroderma.  I have come to grips that I have this connective tissue disease but through my research I've found out that a lot of people really don't know about scleroderma.  There are a numerous amount of people who have this disease but it does not define you and although you have your good and bad days overall the more you know the better off you are.  I would like any feedback, information, opinions or comments.  Not everyone can relate to the issues surrounding this situation so even if you need positive feedback or just someone to chat with that know what your going through please feel free to chime in, calling all my scleroderma sweeties.